Central Tribal University of Andhra Pradesh
A Central University
Institutional Digital Repository
Powered by National Digital Library of India (NDLI)
Communities in DSpace
Select a community to browse its collections.
Recent Submissions
News Letter July-Sept 2025
(2025) CTUAP
Sickle Cell Disease-Related Stigma: Quantitative Assessment From India
(2025) Parikipandla, Sridevi et al..
This multisite cross-sectional study quantitatively assessed stigma related to sickle cell disease (SCD) in India using the Indian
Council of Medical Research-SCD Stigma Scale for India among 208 adult patients and 184 caregivers. Approximately 27% of
patients and 41% of caregivers reported severe or very severe stigma. ‘Familial & reproductive’, ‘illness burden’ and ‘perceived
blame & social judgement’ stigma domains contributed significantly. Ordinal logistic regression analysis identified pain episodes
in patients (AOR = 1.199, p = 0.013) and caregiver gender (AOR = 0.300, p = 0.016) and income (AOR = 0.999, p = 0.048) as
significant factors associated with stigma severity. The findings underscore a substantial psychosocial burden and highlight the
need for culturally grounded, multilevel interventions integrated into SCD care programs to address stigma comprehensively.
Health System‐Led Multimodal and Multilevel Interventions to Reduce Sickle Cell Disease‐Related Stigma Among Tribal Populations in India: An Implementation Research Protocol
(2025) Parikipandla, Sridevi
Abstract
Background Sickle cell disease (SCD) is a chronic, inherited blood disorder with significant clinical and psychosocial con-
sequences. In India, particularly among tribal populations, SCD is compounded by health-related stigma, which impedes
treatment adherence, timely healthcare access, and quality of life (QoL). However, there is no evidence of structured, health
system–led stigma reduction strategies tailored to the Indian context.
Objective To develop, implement, and evaluate a health system–led, multimodal and multilevel intervention to reduce SCD-
related stigma among patients and caregivers in five SCD-endemic districts of India.
Methods This implementation research adopts a pre-post intervention design and is guided by the Theory of Change
framework for intervention and Proctor’s Conceptual Model for evaluating implementation effectiveness. The intervention
comprises six core strategies: policy advocacy, capacity building of healthcare providers, individualized and family coun-
selling, peer support groups, school-based awareness campaigns, and community mobilization through IEC activities. The
study targets key stakeholders across the health system, community, and household levels. The impact will be assessed using
the Indian Council of Medical Research-SCD Stigma Scale for India (ISSSI), alongside standardized tools for QoL (SF-36,
PedsQL), resilience (CD-RISC 10), well-being (WHO-5), coping (Brief COPE), stress (PSS), and healthcare utilization.
Expected Outcomes Primary outcomes include the reduction in overall and domain-wise stigma scores. Secondary out-
comes include improvements in QoL, resilience, coping strategies, perceived stress, and utilization of SCD-related health
services. The findings will inform policy recommendations and the integration of stigma reduction interventions into the
national SCD program.
Conclusion This study presents an innovative, contextually grounded approach to address the hidden burden of stigma in
SCD care. The intervention has the potential for scale-up and may serve as a model for addressing stigma in other chronic
and stigmatized health conditions in low-resource settings.
Tracing the Sustainability Components in the Indian Tourism Curricula: An Exploratory Study
(2023) Jitendra Mohan Mishra
Tourism for its intrinsic character of people, planet and profit has been an enduring area of research for sustainable policy and practices. Planning and implementing sustainable tourism in India are largely shaped and groomed in the classrooms. Currently, over two hundred universities across the country offer tourism programs. The current study involves a two-stage process. Available literature was first summarized into items of sustainability components required of a program structure such as sustainability aspects; viz. socio-economic, environmental, and business, case study approach, interaction with stakeholders, research & practices in local settings and timely update of the syllabus. Such components in the second stage of the research formed the basis of the questionnaire used for qualitative research involving senior academics responsible for designing the syllabi. Findings present a model on the effective integration of sustainable tourism theories and practices into tourism curricula.
Overleaf/LaTex Template for PG Disserations
(2025) Central Library